ms. fresh fish

Guest Post: Life with Bean, our son with Down Syndrome
July 27, 2013, 7:55 pm
Filed under: family, Guest Contribution

Comment from Lori: This third of my guest posts has come about like the previous ones – a personal email that I felt so profoundly impacted by and felt are such important words and messages for others. In this case, my friend – quite possibly the kindest person you could ever meet on this planet – with her husband (also super awesome), opens up, shares, and asks for support for their family. They have three children: A six year old, a three year old, and a six-month old. The three year old was diagnosed with Down Syndrome about a month after he was born. This diagnosis altered their life-path forever. In addition to their awesome parenting and incredible honesty, it’s their commitment to self-care and happiness that I find most inspiring.


Friends and family,


We have decided to reach out to our families and friends and open up a part of our lives that we don’t always share. For those of you that are at work or are perhaps distracted by other things right now, we suggest that you continue to read this when you find a moment of quiet. We realize that what we are about to say may seem to be “out of the blue” and will take you through a range of emotions.

Our intention is not to overwhelm, shock or have you feel sad. It is simply something that we have wanted to do for so long and feel that we are finally ready. I can personally remember a time following K’s diagnosis (Down Syndrome) where I cried in my sleep. I read every memoir and novel written by other mothers and kept wondering to myself if I would ever find the peace and serenity as they did. I believe we have.

So, here it is. A candid and honest sharing of our lives. We want to share our journey as parents of a special needs child. Continue reading


Pluralistic Ignorance (or: Why FB “liking” and retweeting are valuable)
March 18, 2013, 7:26 pm
Filed under: Guest Contribution

(Note from Lori: This is a guest contribution from Aven McMaster, someone I met on Twitter, who needed somewhere to put her cogent, thoughtful opinion on this matter. In light of the news today, we thought it particularly well-timed. People, your voice, no matter how quiet, makes a difference.)

I often see a certain amount of wearied, sometimes cynical disparagement of “Twitter outrage”, when there’s a flurry of retweets and comments about a particularly egregious example of sexism or racism or homophobia, or a particularly cruel governmental policy, or media or pop culture crassness. The argument generally seems to be that such reactions are pointless (and often overreactions), and that signing epetitions or hashtagging one’s protests will do nothing to change the minds of those who perpetrate the injustices and discrimination. Continue reading